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About Us
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Why It Matters

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Home
About Us
- Board of Directors
- Medical and Scientific Advisory Board
What We Fund
Why It Matters

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The GRACE Network was built from direct experience supporting families and research in SPG4. That work continues through SPG4 Together and serves as the foundation for a broader, scalable model.

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The GRACE Network for Rare Diseases is a 501(c)(3) nonprofit, and all donations are tax-deductible with the guidelines of U.S. law. 100% of the donations will go towards supporting research for treatment or a cure.

EIN 42-2528192

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